Just so these dipshits know, I’m already feeling the cuts to Medicare/Medicaid staffing and services.
I live in the US and rely on Medicare because I’m fully disabled, to the point of being homebound.
Apparently the division that deals with remote visiting technology has been cut, so they can’t legally fill my prescriptions anymore unless I physically travel nearly an hour to their office every 3 months to remain eligible, and my doctor can’t legally renew medications that I’ve been on for 20 years. Within a couple of months I’ll have to stop taking all of my long term maintenance meds because I cannot travel to their office.
This will remove all my quality of life and will kill me slowly. I don’t want to die slowly of neglect, so I’ve got a decision to make, and I’m putting it off because I really don’t want to die yet.
I don’t know what to say except I have a name. I’m Lilly Piper. I’m a very good user experience designer, a pretty good writer, and decent friend.
We’re not faceless or nameless. I just want someone to remember that there are names behind these policies.
I’m good at sewing; I make period correct corsets from the 1800s and before (proof and more proof).
I’m actually great at sewing. I do embroidery and am a great listener. I’m also a good writer and editor. I didn’t need to die like this, but I won’t be homeless again, and I won’t beg in the streets for medicine. I just won’t.
e: links
i don’t want you to die
Thanks. I appreciate that.
I’m not just talking about myself, but others like me. I’m Lilly Piper, but there are others like me. You can try to save all of us, and I would greatly appreciate your efforts.
I’d like to say I don’t understand what you’re going through.
I’m a 3x attempt survivor, disabled, and terrified. I’m on SSDI, Medicare/Medicaid, and in HUD housing. My situation is not the same but I see you.
I wish there was more I could offer, but you are not alone.
I’m sorry. I wish you didn’t have to go through this. You don’t deserve that.
It’s really disgusting how these self proclaimed Christians are so eager to discard the needy to give to the ultra wealthy.
There are still American out there are trying to fight to help disabled Americans like you and everyone else to be able to live a dignified life.
Hang in there.
I don’t think the claim to Christianity is particularly relevant. Organized religion has been abused for its entire existence – one might reasonably argue that that was the point of it.
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Pharisees, liars, hypocrites.
This must be terrifying. I disagree with this new requirement to appear in person every few months for reasons just like this, and I’d like to share cases like yours when I talk to Trump voters. Would you be willing to share the condition that keeps you homebound and prevents you from traveling in person?
I’m happy to share my story with anyone.
I have a combination of rheumatological and genetic issues, including RA, Sjögren’s, Ehlers Danlos, severe osteoporosis, and a couple of related issues that have caused severe GI and heart issues. I can’t digest fruits or vegetables (they come out looking exactly how they went in) so my diet is severely limited, and I have seizures.
The drugs they’re saying I can’t have anymore include hydroxychloroquine, pilocarpine, prolia, and a few drugs meant to make my life more livable (tizanadin, gabapentin, mirtazapine, and ondansetron).
e: I can’t travel because of the seizures and that being out and about exacerbates my heart condition (SVT and periodic sinus arrest – I have a loop monitor).
I don’t take any opioids or anything like that, only things to keep GI cramps in check so I can at least eat a bit, plus metoprolol er and more paracetamol than is safe, because nobody is willing to even attempt to manage my pain at this point. I’m better at that through means that won’t ruin me physically or psychologically since I’ve had to for my entire life, since I was too small to have choices.
e2: Let me know if you want to know anything else. (edited to be a bit more specific)
As a fellow writer I don’t want you to die. I bought your book can’t wait to read it. Stay safe and if we on Lemmy can do anything to help please let us know.
Thanks so much! I’d love to know what you think if you read it. Let me know if you’d like me to read something, too!
You’re welcome just arrived in the mail today. Will read it soon as I finish the one I am reading.
And if yoor interested in sci fi I have a novel,
Wow thanks!
I’ve just picked up yours on kindle (I’ll get the hardback soon, I just can’t afford to atm). Also followed.
I’m sleepless due to a thunderstorm with tornadoes, so your book can calm my nerves tonight, thanks!
That’s awesome! Thank you so much. I following you as well. I have two more books that I will be republishing soon.
Nice! It’s great to bump into other authors in random places. I’ll keep my eye out for your other 2 books!
Yes it is. I believe we are all in this together. It’s cool because my wife is also a writer and my son is working on his first novel.
I want you to know that I see you. I regret that we don’t live anywhere near each other.
In my youth, I sewed my historical recreation garb (poorly). While I can’t program, or do UX, I have worked with folks that did that while I managed the server side of things. And I have some experience in visual art.
I am also a decent listener. I’d be happy to listen to whatever you want to talk about. DM me?
I’m a disabled vet. I’m unemployable. SSDI is the only thing that makes things breathable for us. The only real way I have to make any money on the side is by painting DnD minis, dice towers, or maybe Gunpla commissions. It’s so difficult to do much in a day that it takes me quite some time to paint just a couple minis. Months on a gundam. I just don’t have the stamina to do much in a day. Fatigue is killing me. I’ve got a few painted, but I haven’t had the energy to put them up anywhere yet. I have just as many to paint still.
Body wide small fiber neuropathy, a central nervous system issue and colon removal really tanked me. Winter (Wa state) and fronts rolling through, even in summer, tank me even more. I think the change in air pressure is what does it.
A cut in medicare means that I also now have copays. I have tons of doc appointments still. No one can tell me what the root of the issue is, or at least prove it as it’s very likely chemical exposures. All funding that would have led to a “here it is” was shuttered. Regular blood tests due to colon removal. Regular tests due to the fucked up nervous system, which is still progressing 20 years after the last exposure and 18 after it started.
My wife is a PARA, but we’re in a low income area and PARAs don’t make shit. From my excel math, we can make it by with no SSDI. However, we’ll have absolutely no extra money. No money to replace clothes. No money for home repairs. No money for vehicle repairs. Before you say it, we do need them. Taking public transit is incredibly painful, and shitty at best. Plus I have no energy to do that. I can barely do the appointments I have, even driving myself the only 20 mins, avg, to the various doc appointments.
I feel like such a waste already. I love math. I love engineering. I love turning a wrench. I love cooking. I can barely do any of it. These assholes seem to think we’re all grifting and “welfare” queens. Sad thing is, there are many more vets in my position. Yet many don’t seem to realize that the GOP hates us. They’ll keep voting for it. Voting for that shotgun to the foot and pleading for more like a gimp gagging daddy for more.
I’m so sorry. You shouldn’t be facing these cuts on top of everything else. I hope you can find some relief soon.
Thanks for sharing this with us. If my friend was in similar circumstances, I would tell them to read this de-paywalled 404 Media article with a doctor and lawyer next to them, to do what the doctor and lawyer say and comply with all laws and best practices and sensible precautions, and that it wasn’t medical or legal advice and neither is this Lemmy post.
Also, corsetry kicks ass and your work is gorgeous. My SO found creators like Abby Cox, Bernadette Banner, and Nicole Rudolph during 2020 and it’s been an absolutely mesmerizing rabbit hole to fall into even for a cishet fella well outside the key demographics. Although, unisex medical compression support garments are more relevant to me lately; is that an angle that drew you to them with EDS and everything?
I’m glad there’s a gamepad in that picture too. What you’ve shared speaks to a life lived very well in spite of health and circumstance.
I understand. In death, a member of Project Mayham has a name. Their name is Lilly Piper.
I’m sorry. I’m so sorry.
i assume you mean teledoc, yea that was suppose to be cheaper than in-person, so its going to get worst if they are cutting that too.
It’s been cut now for Medicare patients in my area; not sure whether it’s my state or at the fed level, but my doctor has been warned more changes are coming soon. They already can’t log on to the teledoc system, so it’s just gone, apparently.
Oh look, that thing they said they wouldn’t do but everyone who isn’t their followers knew they would anyway.
😳😱🤯😮😲🙊😯
Anyway.
How conveniently timed, right after Trump’s EO to supposedly reduce medicine costs. Definitely no distractions or collusion there.
it actually wont, he tried this in his first term as a distraciton.
“Savings like these allow us to use this bill to renew the Trump tax cuts and keep Republicans’ promise to hardworking middle-class families,” said Rep. Brett Guthrie of Kentucky, the GOP chairman of the Energy and Commerce Committee, which handles health care spending.
How the fuck are tax cuts for the wealthy gonna help the nearly nonexistent middle class?
republicans think the middle class starts at 100 million dollars
Because Republicans always think they’re are just on the cusp of becoming a millionaire.
If we help the wealthy they’ll piss on our heads.
Well it’s Republicans so like the myth of turkeys in the rain.
They’re trying to kill as many people as possible, What disgusting human beings.
Why can’t this be stopped? I don’t understand. They’re dismantling the federal government and destroying America piece by piece.
keep in mind He’s already killed maybe millions of people during COVID.
Thump May I go down your history as one of the biggest Butchers in history.
This can be stopped but the GOP is unwilling to do the legal process to stop him
gop is addicted to trumps grift, they cant afford to oppose him when they can benefit themselves right now.
Because the GOP are not only as complicit in this as Trump, they are the root cause of all this happening, and cutting medicaid has been on their wishlist for decades. McConnell termed himself “the grim reaper”, exactly based on his objective to cut thing like this. I don’t understand why people keep considering them as some separate entity from Trump.
Trump is the manifestation of the GOP.
Mitch McConnell referred to himself as the “Grim Reaper” to signify his role in blocking progressive policies, stating that if he remained Senate majority leader, such policies would not pass. Mitch wasn’t responsible for cutting things from bills. He would just simply flat out let the bills sit on his desk where they went to die, hence the nickname. But my point is moot lol
People had their chance to stop him last November. A third of those eligible didn’t even vote.
Now it’s up to the courts. The other branches of government are controlled by a deranged Authoritarian and his sycophants.
They took the opportunity to steal the election. The people didn’t vote for him.
https://sdvoice.info/trump-lost-vote-suppression-won-here-are-the-numbers/
https://electiontruthalliance.org/eta
First and last links are the data. The middle links are for us stupid people that need to be told how to read the data in the last link.
Susan Collins and Chuck Schumer are very concerned.
Oh, Schumer’s going to stop being Mr. Nice Guy, and write a letter calling Trump a knave and a jackanape! Just wait and see!
I heard Jefferies is staging a sit-in on May 25th as to not inconvenience anyone and calling for bipartisanship to fight this bill.
American voters are hilarious. Voted out the party trying to bolster Medicare and Medicaid. Then complain the party out of power for not stopping the cut.
Unconscionable.
People who think they are literally Gods, and have more resources than they can ever deplete, hate the idea of giving anything to the society that allows them to exist.
I wonder when we’ll finally revoke that license.
https://www.nbcnews.com/id/wbna11237564 Bush Jr did this 20 years ago and got so shellacked by the constituency that (coupled with the whole middle east invasion that accomplished nothing and killed a few people) made it so republicans and conservatives dare not refer to him ever again because of how toxic he is
and the msm have rarely brought up that over the years.
I am Jack’s complete lack of surprise.
Yo we’re fucked. I hope there’s light at the end of the tunnel, like assisted unlivable.
It’s still the first year
Maybe this will finally get thru to MAGAts? When he said he didn’t care about you, only cares about your vote— he wasn’t fucking lying for once.
Sucks for people who didn’t vote for diaper don tho. A lot of innocent people are going to suffer because of that disgusting twatwaffle…
It’s only big and beautiful? Sorry Don I only accept the biggest and most beautiful.
how many times did johnson try to cut this since last year.
